Greetings to all who read. We've been waiting for a written report from the National Institute of Health for some time now in hopes that we will have the "benign" status of Kim's tumor confirmed, and hopefully some light shed on the nature of said tumor/gargoyle/...
On Thursday, November 12 we finally had an appointment with Dr. Liao, our oncologist, to decipher the results received from the NIH. Here is what we heard.
The samples taken from Kim's chest on October 2nd show no signs of malignancy! This is fantastic news, as we can finally breathe with the knowledge that she has no cancer.
Then things got cloudy again. Not only is it not cancer, but there may not be a tumor at all! The doctor explained that her thymus is involuted, and that there appears to have been some fluid that has leaked out and formed some cysts either on or adjacent to her thymus gland, causing the appearance of a tumor. He said nothing about it being a third boob. (I've always hated that man...now I know why.)
So what does this mean? No cancer...no tumor...no more need to visit the oncologist. Kim's biggest problems are now that one of her interior stitches is sticking out and she needs to have it cut out, and she needs to go see the Ear, Nose, and Throat (ENT) specialist to try to figure out why her voice is still so weak and why she still feels as though there is some lump in her throat. Big change from 61 days ago.
As you can expect, Kim and I are so relieved to have heard this news. Thanksgiving this year takes on so much more meaning. We'd like to share a partial list of what we are thankful for:
No cancer
Dedicated doctors and nurses who have provided excellent care
The presence of God in our lives as he has cared for us over this time
The power of prayer from so many people, both familiar and unknown, who have shown concern for us and our family
The myriad of people who have offered and provided assistance by way of assisting with cleaning and meals
Staff at my school who have shown me patience, grace, and overwhelming support, staff at the kid's schools who have done the same
Our families who have dropped everything when needed and done whatever we needed
The list could go on and on. Please just know that we couldn't have done any of this without the support of so many. Please know you can count on us if, God forbid, you find yourself in a similar situation.
So now the question has become...will the blog end? I'm not sure. It certainly will become less frequent, but it is a nice way to get thoughts out. Kim definitely wants to write to it.
If nothing else, thanks for reading, thanks for your support, and thanks for listening.
Steve
Sunday, November 15, 2009
Monday, October 26, 2009
Day 41 - October 26, 2009
I've always thought that time sped up more and more the older I get. Typically...this is true. Not the past 41 days. It's hard to believe it has only been three weeks since Kim's last biopsy, but I swear the last 41 days has felt like 411. Here is the update we received today.
Kim's surgeon, Dr. Nichols, received a report from the National Institute of Health, who seconded the opinion of PhenoPaths, which is benign tumor! This is fantastic news in that doctors at two internationally recognized labs have found no signs of malignancy in Kim's chest. This, of course, is cause for much thanksgiving, and a reminder of the power of prayer in our lives.
What we still don't know is...what is it?! So...let's go back to our list:
1)Lymphoma...no
2)Thymoma...no
3)Goiter...dunno
4)Gargoyle...seems timely
5)Skunk...possible?
6)Third boob...still hopeful!
In the mean time, we are now waiting to hear back from our oncologist that he has received a written report from the NIH. Once he has received it we will go in and discuss what happens next. Dr. Nichols has proposed a follow-up CT scan in about 3 months to get a baseline reading of the tumor and then (presumably) follow up annually to monitor whether or not it is growing.
Until then, we are grateful tonight, and hopeful for more positive news next time we see the doctor. (And I'm still on the look out for a three-cup bra! hehehe)
Kim's surgeon, Dr. Nichols, received a report from the National Institute of Health, who seconded the opinion of PhenoPaths, which is benign tumor! This is fantastic news in that doctors at two internationally recognized labs have found no signs of malignancy in Kim's chest. This, of course, is cause for much thanksgiving, and a reminder of the power of prayer in our lives.
What we still don't know is...what is it?! So...let's go back to our list:
1)Lymphoma...no
2)Thymoma...no
3)Goiter...dunno
4)Gargoyle...seems timely
5)Skunk...possible?
6)Third boob...still hopeful!
In the mean time, we are now waiting to hear back from our oncologist that he has received a written report from the NIH. Once he has received it we will go in and discuss what happens next. Dr. Nichols has proposed a follow-up CT scan in about 3 months to get a baseline reading of the tumor and then (presumably) follow up annually to monitor whether or not it is growing.
Until then, we are grateful tonight, and hopeful for more positive news next time we see the doctor. (And I'm still on the look out for a three-cup bra! hehehe)
Sunday, October 18, 2009
Day 33 - October 18, 2009
We haven't talked in awhile because frankly...there is not much to talk about.
Our last appointment was on October 12th with our surgeon, Dr. Nichols. He reported to us that PhenoPath, the pathology lab in Seattle, sees no signs of cancer in Kim's tumor. This is good news. We're waiting to get results from the National Institute of Health to help provide even more clear direction on what to do next. Until then...we wait.
Kim is still in good spirits, but is absolutely exhausted...even showering wears her out. We think her body is fighting whatever skunk or gargoyle is in her chest, and she has little energy for anything else. It is hard to watch, but we know it is part of the process.
What she is doing is this...she is eating very healthily and working with a nutritional therapist to try to combine western medicine with natural remedies as well. She is eating only whole foods...no refined sugars, cooked foods, processed foods, etc. Lots of organic veggies, some organic fruit, little organic meat, and lots of thing I had previously not heard about. I admire the determination she has about beating this.
So for now, we don't know what is growing inside her, just that something is.
Lots of you have offered help of many kinds, and we've been overwhelmed by your kindness. At this point, Kim is really focusing what energy she has on getting well, which doesn't leave energy to shop, cook or clean. A friend of ours, Joani Rittierodt, has graciously volunteered to coordinate people who would like to provide assistance to our family. Please know it is very humbling to accept the help, and we wouldn't do so if we didn't think it would aid in her healing processes. Joani is putting together an email list to send a calendar out to if you would like to volunteer. Please contact her by the end of the week if you would like to be on her list. The best way is by email, snoopy1972@msn.com
Again, thanks to you all for your energy, prayer, and positive thoughts. We're confident we will beat this, and know we can with the love and support of those who surround us.
Now Joani...go to sleep!
Our last appointment was on October 12th with our surgeon, Dr. Nichols. He reported to us that PhenoPath, the pathology lab in Seattle, sees no signs of cancer in Kim's tumor. This is good news. We're waiting to get results from the National Institute of Health to help provide even more clear direction on what to do next. Until then...we wait.
Kim is still in good spirits, but is absolutely exhausted...even showering wears her out. We think her body is fighting whatever skunk or gargoyle is in her chest, and she has little energy for anything else. It is hard to watch, but we know it is part of the process.
What she is doing is this...she is eating very healthily and working with a nutritional therapist to try to combine western medicine with natural remedies as well. She is eating only whole foods...no refined sugars, cooked foods, processed foods, etc. Lots of organic veggies, some organic fruit, little organic meat, and lots of thing I had previously not heard about. I admire the determination she has about beating this.
So for now, we don't know what is growing inside her, just that something is.
Lots of you have offered help of many kinds, and we've been overwhelmed by your kindness. At this point, Kim is really focusing what energy she has on getting well, which doesn't leave energy to shop, cook or clean. A friend of ours, Joani Rittierodt, has graciously volunteered to coordinate people who would like to provide assistance to our family. Please know it is very humbling to accept the help, and we wouldn't do so if we didn't think it would aid in her healing processes. Joani is putting together an email list to send a calendar out to if you would like to volunteer. Please contact her by the end of the week if you would like to be on her list. The best way is by email, snoopy1972@msn.com
Again, thanks to you all for your energy, prayer, and positive thoughts. We're confident we will beat this, and know we can with the love and support of those who surround us.
Now Joani...go to sleep!
Sunday, October 11, 2009
Day 26 - October 11, 2009
So...it's been a great weekend, hasn't it? The kids and I went to the beach with friends on Friday and enjoyed beautiful weather while Kim rested and recovered from her biopsy at her parent's house. We enjoyed a flag-football game played by a friend's son and later a bon-fire at our neighbors to wrap up a great Saturday. Today we drove to Sequim to pick Kim up from the Nadon Bed and Breakfast Recovery Center. The Huskies won...the Seahawks won...doesn't get much better than that, does it?
Or does it?
When Kim and I arrived home she discovered a message from her surgeon, Dr. Nichols stating that he had heard from PhenoPaths, the world-class lab in Seattle reviewing her case. The opinion of PhenoPaths is that the tumor in her chest is benign...no malignancy.
Now I understand the phrase "cautiously optimistic". We still need to hear from the National Institute of Health, but we are definitely headed in the right direction. We meet with Dr.s Nichols and Anderson tomorrow to do a post-op check-up from her biopsy on Friday, September 25. We hope to hear more answers tomorrow.
So...while we thought we had it nailed down, the intrigue has re-entered the situation. Apparently it could still be a goiter, gargoyle, or skunk...we'll have to wait and see. Personally...I'm still hoping for a third boob...no caution in my optimism.
Tonight we are thanking God for watching over us and for the benefit of all the prayer we have been blessed with. We're hoping we are nearing the end of our mystery.
Have a great week.
Or does it?
When Kim and I arrived home she discovered a message from her surgeon, Dr. Nichols stating that he had heard from PhenoPaths, the world-class lab in Seattle reviewing her case. The opinion of PhenoPaths is that the tumor in her chest is benign...no malignancy.
Now I understand the phrase "cautiously optimistic". We still need to hear from the National Institute of Health, but we are definitely headed in the right direction. We meet with Dr.s Nichols and Anderson tomorrow to do a post-op check-up from her biopsy on Friday, September 25. We hope to hear more answers tomorrow.
So...while we thought we had it nailed down, the intrigue has re-entered the situation. Apparently it could still be a goiter, gargoyle, or skunk...we'll have to wait and see. Personally...I'm still hoping for a third boob...no caution in my optimism.
Tonight we are thanking God for watching over us and for the benefit of all the prayer we have been blessed with. We're hoping we are nearing the end of our mystery.
Have a great week.
Wednesday, October 7, 2009
Day 22 - October 7, 2009
Have I mentioned how much I love the people I work with? They've been so supportive throughout this whole process. Today I was pumping kids up at lunch for our night football game tonight when one office staff member came to find me to take a call from Kim. The oncologist had called and wanted us to come in...in one hour. Of course it was no big deal to leave in 15 minutes, because everything just "works" with my colleagues. I couldn't do this without them.
Once at Dr. Liao's office we received tentative news. Pathologists at TG have determined at this point that there are 2 types of tissue in Kim's sample. They all originate in the Thymus, which we found out today is quite important as a child as it aides in your immunity, but as an adult it is about as useful as a parka in downtown Baghdad. A condition sometimes exists called (forgive the spelling) hyper-placia. This is gross over-growth of the tissue. It is begnin, but can become malignant. She has evidence of that type of tissue in her sample. Some at work believe this is evidence of the mysterious "third boob". She also has apparent evidence of malignant thymoma in the sample. On top of that, there appears to be the existence of fluid filled cysts for good measure. That said, this was good news today. Let me finish.
1) Doctors believe there is a good chance that they removed most of the tumor during the biopsy on the 2nd.
2) The treatment for thymoma is surgical, and if they can get all the tumor plus some surrounding tumor they often times are done...no chemo or radiation. This possibility looks good for Kim. Good news: no more tumor. Bad news: bye-bye third boob. Oh well...you win some, you lose some.
3) The tumor is very slow growing, so we don't have to worry while we are waiting on results from other labs.
4) Pathologists from TG are examining right now. They are affiliated with Seattle Cancer Care Alliance...some of the best in the country. Doctors at PhenoPaths are looking as well...they are some of the best in the world. Doctors at the National Institute of Health will be looking at it soon...you know them. All told...3 world-class organizations examining Kim's case...we like those odds.
So for now, we feel good to be one step closer to a resolution. In about 2 weeks we'll have definitive answers about where we are going. We're looking to surgery in early November, and are hopeful about the possibility of being cancer free by Thanksgiving. Wow...that would be something to give thanks about...right?
Heart-warming story of the week: The kids at school have now heard about what is going on. Teenagers are often ego-centric, but are very caring and sensitive at the same time. A 9th grader came to me the other morning with a smile covering a concerned look. She explained how sorry she was about what was going on, and that her family was really into Relay for Life. She felt it was important to give us a purple back pack, bracelet, and t-shirt that all read "Cancer Sucks"! It was so sweet, and so genuine. I live for moments like that.
One more thing...have you heard people say that bad things always happen in threes? I believe good things do too. Kim's friend from California who was also having biopsies done? Clear. My friend at work who's family was impacted by flooding in the Philippines? Safe. Now...Kim's turn. I think we're almost there!
There's your update. Have a great weekend.
Once at Dr. Liao's office we received tentative news. Pathologists at TG have determined at this point that there are 2 types of tissue in Kim's sample. They all originate in the Thymus, which we found out today is quite important as a child as it aides in your immunity, but as an adult it is about as useful as a parka in downtown Baghdad. A condition sometimes exists called (forgive the spelling) hyper-placia. This is gross over-growth of the tissue. It is begnin, but can become malignant. She has evidence of that type of tissue in her sample. Some at work believe this is evidence of the mysterious "third boob". She also has apparent evidence of malignant thymoma in the sample. On top of that, there appears to be the existence of fluid filled cysts for good measure. That said, this was good news today. Let me finish.
1) Doctors believe there is a good chance that they removed most of the tumor during the biopsy on the 2nd.
2) The treatment for thymoma is surgical, and if they can get all the tumor plus some surrounding tumor they often times are done...no chemo or radiation. This possibility looks good for Kim. Good news: no more tumor. Bad news: bye-bye third boob. Oh well...you win some, you lose some.
3) The tumor is very slow growing, so we don't have to worry while we are waiting on results from other labs.
4) Pathologists from TG are examining right now. They are affiliated with Seattle Cancer Care Alliance...some of the best in the country. Doctors at PhenoPaths are looking as well...they are some of the best in the world. Doctors at the National Institute of Health will be looking at it soon...you know them. All told...3 world-class organizations examining Kim's case...we like those odds.
So for now, we feel good to be one step closer to a resolution. In about 2 weeks we'll have definitive answers about where we are going. We're looking to surgery in early November, and are hopeful about the possibility of being cancer free by Thanksgiving. Wow...that would be something to give thanks about...right?
Heart-warming story of the week: The kids at school have now heard about what is going on. Teenagers are often ego-centric, but are very caring and sensitive at the same time. A 9th grader came to me the other morning with a smile covering a concerned look. She explained how sorry she was about what was going on, and that her family was really into Relay for Life. She felt it was important to give us a purple back pack, bracelet, and t-shirt that all read "Cancer Sucks"! It was so sweet, and so genuine. I live for moments like that.
One more thing...have you heard people say that bad things always happen in threes? I believe good things do too. Kim's friend from California who was also having biopsies done? Clear. My friend at work who's family was impacted by flooding in the Philippines? Safe. Now...Kim's turn. I think we're almost there!
There's your update. Have a great weekend.
Friday, October 2, 2009
Day 17 - October 2 - Part 2
So...can't believe I forgot one more funny story from today...
Kim's nurse that escorted her back to the surgical prep center was not the most outgoing or bubbly. We were in the cardiac center due the location of the tumor. The final thing she tells Kim is that she needs to get undressed...panties and everything...and put on the flattering hospital gown. In a room with floor to ceiling windows in the doors. That slide open. That are open. With the curtain open.
This was mostly funny because directly across from where my wife was about to visit Naked Town was a man easily in this 60's, also in a gown, looking into our room from his bed.
This is the cardiac wing, and I couldn't help but think...
Can his heart handle the show?
In his best interest I went ahead and shut the door. Thanks nurse for being so helpful!
Kim's nurse that escorted her back to the surgical prep center was not the most outgoing or bubbly. We were in the cardiac center due the location of the tumor. The final thing she tells Kim is that she needs to get undressed...panties and everything...and put on the flattering hospital gown. In a room with floor to ceiling windows in the doors. That slide open. That are open. With the curtain open.
This was mostly funny because directly across from where my wife was about to visit Naked Town was a man easily in this 60's, also in a gown, looking into our room from his bed.
This is the cardiac wing, and I couldn't help but think...
Can his heart handle the show?
In his best interest I went ahead and shut the door. Thanks nurse for being so helpful!
Day 17 - October 2
Today was a long, but good day. Thankfully, on top of all the good news we received today we received even better care and tumor humor!
We arrived at Tacoma General at 6:00 AM ready for Kim's second biopsy in 9 days. Today's was what is called a mediastinoscopy. They knocked her out with general anesthesia and removed a golf-ball sized amount of tumor tissue, as well as some fatty material, to test. At this point, nothing about the tumor is screaming cancer, and they are leaning away from lymphoma. It still could be some disease of the thymus, including germ cell tumor or a thymoma. They did say that the really bad bad bad stuff would be obvious. They didn't see that. That is good good good. She recovered well and came home at about 3:00 PM after spending an hour in the operating room.
I have to say again the doctors, nurses, and support staff are fantastic at TG. There was a woman of retirement age working as a volunteer in the waiting room. We briefly checked in, gave her our names, and she remembered who we were all day, finding us whenever there was updates without having to page us or ask us for our names. She was adorable.
Now...for tumor humor.
For those keeping score at home:
1)Thymoma
2)Germ Cell Tumor
3)Goiter
4)Gargoyle
5)Skunk
I'm so confused.
Overheard in the waiting room:
(Two friends talking) "She has a big heart shaped ass! It's a nice ass. What shape ass do I have?"
(Same two friends walking past us later...two adults talking) "Really? You're reading a book without pictures?"
Observation: We're sitting in the surgical waiting area of TG, which is beautiful. People have surgery because they are sick. This makes me want to be healthy. Why is it then that the other people waiting had brought a dozen donuts to eat, and another woman was eating a whole bag of puffy spiral Cheetos? I had to laugh...and craved celery.
Doctor is pleased with the samples, and explained that Kim may feel discomfort for a few days as he pulled out fatty tissue (lipo for her thoracic cavity?) and a big tumor chunk and left a void in her chest. Reminded me of a song from first grade. Remember the song about a hole in the bucket? I offer my own version:
(Steve) There's a hole in your thymus dear Kimi dear Kimi. There's a hole in your thymus dear Kimmi a hole.
(Kim) Well why dear Stevie dear Stevie dear Stevie. Well why dear Stevie dear Stevie well why?
(Steve) Your tumor dear Kimi dear Kimi dear Kimi. Your tumor dear Kimi dear Kimi your tumor.
You get the drift.
So...we're home and resting. Kim was fully scrubbed from the edge of her chin to her navel with betadyne...she looks like a hot oompa loompa! She's a trooper. We both appreciate all the support. Email is good now as she has no voice. When we hear word back...you'll be updated.
Have a great weekend.
We arrived at Tacoma General at 6:00 AM ready for Kim's second biopsy in 9 days. Today's was what is called a mediastinoscopy. They knocked her out with general anesthesia and removed a golf-ball sized amount of tumor tissue, as well as some fatty material, to test. At this point, nothing about the tumor is screaming cancer, and they are leaning away from lymphoma. It still could be some disease of the thymus, including germ cell tumor or a thymoma. They did say that the really bad bad bad stuff would be obvious. They didn't see that. That is good good good. She recovered well and came home at about 3:00 PM after spending an hour in the operating room.
I have to say again the doctors, nurses, and support staff are fantastic at TG. There was a woman of retirement age working as a volunteer in the waiting room. We briefly checked in, gave her our names, and she remembered who we were all day, finding us whenever there was updates without having to page us or ask us for our names. She was adorable.
Now...for tumor humor.
- We were asked again today if she was depressed or had significant changes. Duh.
- She was NOT asked if she was smokin' hot or pot, though she was hot!
- Her mother told her she has had good luck with some anesthesia called "Milk of Amnesia". Ironic she forgot the technical name, eh? The anesthesiologist (whom she wants to marry, much like the anesthesiologist from child birth) was freakin' hilarious. He informed us that "Milk of Amnesia" is actually something called Propofol. Those not living under a rock recognize this as the stuff that Michael Jackson was on. I now call is Michael Jackson Juice. Didn't work out so well for him...worked beautifully for Kim. Don't know if it is coincidence or not that she moon-walked out of the hospital. Hmmmmmm...
- When asked about intibation he said it would happen. Kim asked if she would be out by then...he said no. He said most people don't choke that much, and then when all the color was completely gone from her face he smiled and said "Just kidding!" Gotta love someone who has fun at work!
- Our new surgeon today, Dr. Anderson, was great. He explained that he thought the tumor was high in her chest, thus not requiring him to dig deep in her chest looking for it. This is good considering that the heart, lungs, arteries and veins are all deep in the chest. The quote of the day came from him..."We don't want to go in too deep and start poking skunks."
For those keeping score at home:
1)Thymoma
2)Germ Cell Tumor
3)Goiter
4)Gargoyle
5)Skunk
I'm so confused.
Overheard in the waiting room:
(Two friends talking) "She has a big heart shaped ass! It's a nice ass. What shape ass do I have?"
(Same two friends walking past us later...two adults talking) "Really? You're reading a book without pictures?"
Observation: We're sitting in the surgical waiting area of TG, which is beautiful. People have surgery because they are sick. This makes me want to be healthy. Why is it then that the other people waiting had brought a dozen donuts to eat, and another woman was eating a whole bag of puffy spiral Cheetos? I had to laugh...and craved celery.
Doctor is pleased with the samples, and explained that Kim may feel discomfort for a few days as he pulled out fatty tissue (lipo for her thoracic cavity?) and a big tumor chunk and left a void in her chest. Reminded me of a song from first grade. Remember the song about a hole in the bucket? I offer my own version:
(Steve) There's a hole in your thymus dear Kimi dear Kimi. There's a hole in your thymus dear Kimmi a hole.
(Kim) Well why dear Stevie dear Stevie dear Stevie. Well why dear Stevie dear Stevie well why?
(Steve) Your tumor dear Kimi dear Kimi dear Kimi. Your tumor dear Kimi dear Kimi your tumor.
You get the drift.
So...we're home and resting. Kim was fully scrubbed from the edge of her chin to her navel with betadyne...she looks like a hot oompa loompa! She's a trooper. We both appreciate all the support. Email is good now as she has no voice. When we hear word back...you'll be updated.
Have a great weekend.
Wednesday, September 30, 2009
Day 15 - September 30
Well...we got the call we were waiting for today. Apparently we are more special than we thought we were. Kim received a call from her oncologist Dr. Liao. He had a conversation with the pathologist reviewing the case, Dr. Allen Gown from PhenoPaths in Seattle. He is apparently internationally recognized for his work in the cancer field. His quote to Dr. Liao was something like "This is the most difficult case I've ever worked with". Great.
He is fairly certain that the tumor in Kim's chest (the before mentioned third boob) is a malignant tumor, most likely Thymoma or Germ Cell. Good news is both have high cure rates. Bad news is they still aren't certain. So...we go back to Tacoma General on Friday for another biopsy, this one more evasive to gather a bigger sample of the tumor. This will again be a day procedure, but will cause more discomfort than before. Hopefully we'll know more details next week and will be able to plan a course of action. What we know is that typically thymoma is locally aggressive and requires surgery. With the placement of the tumor this of course means cracking her sternum and doing a procedure akin to open heart surgery. With germ cell it has a similar high cure rate to thymoma, in the 80's, with treatment that begins with chemo and possibly includes surgery at the end.
For now, we are digesting this new information and trying to stay strong and faithful. Even though we've known this is a possibility, it still feels like a kick in the gut today. As always, when I know more...you'll know more.
Take good care, of yourself and those you love.
He is fairly certain that the tumor in Kim's chest (the before mentioned third boob) is a malignant tumor, most likely Thymoma or Germ Cell. Good news is both have high cure rates. Bad news is they still aren't certain. So...we go back to Tacoma General on Friday for another biopsy, this one more evasive to gather a bigger sample of the tumor. This will again be a day procedure, but will cause more discomfort than before. Hopefully we'll know more details next week and will be able to plan a course of action. What we know is that typically thymoma is locally aggressive and requires surgery. With the placement of the tumor this of course means cracking her sternum and doing a procedure akin to open heart surgery. With germ cell it has a similar high cure rate to thymoma, in the 80's, with treatment that begins with chemo and possibly includes surgery at the end.
For now, we are digesting this new information and trying to stay strong and faithful. Even though we've known this is a possibility, it still feels like a kick in the gut today. As always, when I know more...you'll know more.
Take good care, of yourself and those you love.
Tuesday, September 29, 2009
Day 15 - September 29, 2009
So thank you to everyone for calling and inquiring about how today went. For those of you who know me, you know I love music. Today is summed up best by an old song...I believe it is by Tom Petty and the Heartbreakers:
"The waaaaaaiiting is the hardest part!"
No results today...no doctor appointment...no news.
Uggghhh.
Hopefully tomorrow we will get a call inviting us to come into the oncologist to review results...in the meantime...we wait.
I've been thinking about the day we did Kim's biopsy. At the end of it, our pastor led us in a prayer of thanks for all the blessings we have received; friends, family, strong doctors, one localized tumor, etc. It was a great reminder to be thankful for the good that had already happened...a sure sign of answered prayer. In the mean time, I thought I would share with you a few of my other current prayers:
My friend Kari from college who recently had surgery in her third bout with skin cancer - for healing and peace.
My friend Ron, whose family is directly impacted by the recent flooding in the Philippines - for peace, safety, good news and good health.
Many at church who are dealing with their own health issues and family health issues.
Kim's high school friend who is also waiting on biopsy results (they're hoping to get the same good news on the same day)!
Hope to have more news tomorrow. Until then, stay faithful.
"The waaaaaaiiting is the hardest part!"
No results today...no doctor appointment...no news.
Uggghhh.
Hopefully tomorrow we will get a call inviting us to come into the oncologist to review results...in the meantime...we wait.
I've been thinking about the day we did Kim's biopsy. At the end of it, our pastor led us in a prayer of thanks for all the blessings we have received; friends, family, strong doctors, one localized tumor, etc. It was a great reminder to be thankful for the good that had already happened...a sure sign of answered prayer. In the mean time, I thought I would share with you a few of my other current prayers:
My friend Kari from college who recently had surgery in her third bout with skin cancer - for healing and peace.
My friend Ron, whose family is directly impacted by the recent flooding in the Philippines - for peace, safety, good news and good health.
Many at church who are dealing with their own health issues and family health issues.
Kim's high school friend who is also waiting on biopsy results (they're hoping to get the same good news on the same day)!
Hope to have more news tomorrow. Until then, stay faithful.
Monday, September 28, 2009
Day 14 - September 28, 2009
I love fortunes. Fortune cookies, Chinese zodiac place mats, horoscopes, all of it. I have to buy the paper on my birthday so I can read the horoscope that says "On Your Birthday". It's always helpful to know ahead of time what kind of day it's going to be. My mom sent her horoscope to us from last Friday, the 25th...here's hoping it comes true!
Virgo: A loved one's health will change for the better. Good news is easy to share, and this is one time when you enjoy being the messenger. Take advantage of the opportunity to reach out to those you haven't talked to in awhile.
We're remembering this, and other things as we head to the oncologist tomorrow where we hope to hear definitive news on what the heck is growing in Kim's chest. (Though I doubt it is a wayward third boob as one friend has indicated...not sure how that would work, but I'm intrigued!)
I know I often say this, but it bears repeating: We feel so blessed to receive so much support and prayer, often from people we haven't met. My mom sent us a card from a co-worker (I think?) that is a prayer for Kim from the Mass for the Healing, celebrated at the Shrine of Our Lady of Lourdes in France. We've moved from counting states to counting countries! Woo hoo! Not a fan of their mimes, but I do dig their fries...and their toast!
Another friend sends us confirmation that her mother in Costa Rica is praying as well! So...as we have figured it...that makes at least 11 states (including the entire Pacific Time Zone), France and Costa Rica. Not bad for simple country folk!
I have to thank many people...but a few in particular right now: many friends who have watched our kids during appointments, and many more who have offered, our neighbor kid who has made it his responsibility to mow our lawn, and two women from work who so thoughtfully put together a binder to organize our paperwork for doctor appointments and a freezer full of meals ready to eat. It truly is the little things that make a huge difference. It is difficult to be the recipient of such great care. We hope someday to have the chance to return the favor.
Keep reading...I'll post again tomorrow regardless of whether we receive good news, bad news, or word that says "You have to wait longer!"
Steve
Virgo: A loved one's health will change for the better. Good news is easy to share, and this is one time when you enjoy being the messenger. Take advantage of the opportunity to reach out to those you haven't talked to in awhile.
We're remembering this, and other things as we head to the oncologist tomorrow where we hope to hear definitive news on what the heck is growing in Kim's chest. (Though I doubt it is a wayward third boob as one friend has indicated...not sure how that would work, but I'm intrigued!)
I know I often say this, but it bears repeating: We feel so blessed to receive so much support and prayer, often from people we haven't met. My mom sent us a card from a co-worker (I think?) that is a prayer for Kim from the Mass for the Healing, celebrated at the Shrine of Our Lady of Lourdes in France. We've moved from counting states to counting countries! Woo hoo! Not a fan of their mimes, but I do dig their fries...and their toast!
Another friend sends us confirmation that her mother in Costa Rica is praying as well! So...as we have figured it...that makes at least 11 states (including the entire Pacific Time Zone), France and Costa Rica. Not bad for simple country folk!
I have to thank many people...but a few in particular right now: many friends who have watched our kids during appointments, and many more who have offered, our neighbor kid who has made it his responsibility to mow our lawn, and two women from work who so thoughtfully put together a binder to organize our paperwork for doctor appointments and a freezer full of meals ready to eat. It truly is the little things that make a huge difference. It is difficult to be the recipient of such great care. We hope someday to have the chance to return the favor.
Keep reading...I'll post again tomorrow regardless of whether we receive good news, bad news, or word that says "You have to wait longer!"
Steve
Thursday, September 24, 2009
Day 10 - September 24, 2009
So a lot of people today have greeted me with "So...no news is good news, right?" I wish. We had our follow up appointment with Dr. Liao, our oncologist to go over results from Kim's biopsy on Monday. The results? Inconclusive. The tissue samples harvested are fibrous...and don't appear to be cancer. That was good news. There don't appear to be the traditional markers of lymphoma...also good news. However, Dr. Liao introduced me to a new phrase today: "The absence of evidence is not evidence of absence." Translation...just because they haven't seen it yet doesn't mean it isn't there. Shit. What we now know is this...Kim's tissue samples have been sent to Phenopaths, a private pathology lab in Seattle. This apparently is a very good thing...like having Slash give you guitar lessons, or Billy Joel teach you piano or how to marry women WAY out of your league (which apparently I figured out on my own, thank you very much). They are staining the slides to further examine them. We'll hopefully hear something by Monday. The possibility exists that Kim may need to go in for more biopsy work. We've been given lots of new names as well...like Sclerosing Mediastenitis, Histoplasmosis, Immuno Histochemistry, and Sclerosing Lesion. As somebody with a Master's degree, I've never felt more dumb in my whole life. Are these people paid by the syllable? Yikes.
In the mean time, we appreciate the positive, encouraging words, they prayers, and laughs. Somebody told my mom today that "The Jews are praying..." for us. This cracks me up. New score card...
Christians...
Jews...
Muslims...
All praying for my wife and family. Like I told a colleague...at this point it doesn't matter if it is Jesus, Allah, Buddha or some Hindu god...we just want wellness. With that...I bid you good night and wish to pass on my most sincere thanks for walking this journey with us! All who read this are a blessing to my family...I hope you know that.
Steve
In the mean time, we appreciate the positive, encouraging words, they prayers, and laughs. Somebody told my mom today that "The Jews are praying..." for us. This cracks me up. New score card...
Christians...
Jews...
Muslims...
All praying for my wife and family. Like I told a colleague...at this point it doesn't matter if it is Jesus, Allah, Buddha or some Hindu god...we just want wellness. With that...I bid you good night and wish to pass on my most sincere thanks for walking this journey with us! All who read this are a blessing to my family...I hope you know that.
Steve
Tuesday, September 22, 2009
Day 8, September 22, 2009
No new news for today. Want you all to know we read all your comments. Love the humor and encouragement. It really feeds us.
So...on with the tumor humor for today!
We have a very well-intentioned friend who truly wants to pray for healing, and the miracle that a goiter brings at this point in our lives. She really is sweet, but is having one hell of a time remembering what to pray for. Kim patiently reminds her that it is a goiter, because really, who are we to turn down a prayer, right? She excitedly called today asking if there was news from the doctor...there wasn't. Her response..."This is killing me. I'll just keep praying for gargoyles!"
So...for those of you keeping score at home...here is the scale for now.
Worst - Cancer
Better - Gargoyles
Best - Goiter
Hope this clears things up!
Have as blessed a day as we have been having knowing all of you.
Steve
So...on with the tumor humor for today!
We have a very well-intentioned friend who truly wants to pray for healing, and the miracle that a goiter brings at this point in our lives. She really is sweet, but is having one hell of a time remembering what to pray for. Kim patiently reminds her that it is a goiter, because really, who are we to turn down a prayer, right? She excitedly called today asking if there was news from the doctor...there wasn't. Her response..."This is killing me. I'll just keep praying for gargoyles!"
So...for those of you keeping score at home...here is the scale for now.
Worst - Cancer
Better - Gargoyles
Best - Goiter
Hope this clears things up!
Have as blessed a day as we have been having knowing all of you.
Steve
Monday, September 21, 2009
Day 7 - September 21, 2009
First let me thank you all for your well wishes and prayers. Kim and I have always been convinced about the power of prayer, and that has only be reinforced this week. You'll really never know how much we appreciate all the thought and time that has been dedicated to us. We think we counted at least 8 states and D.C. where people are praying for us...pretty overwhelming. Heck...we have the whole Pacific Time Zone!
Now for today. Up and at 'em, left the house at 6:15 to head to TG. Totally felt like the early bird, saw no freakin' worms. Is that good? Can't figure that out. Anyway, we met with tremendous staff at TG today. My mom stayed with me for moral support, though it was tough to admit that I would need that. Our pastor, Paul Freese met us there as well. What a blessing that was. As a pastor, he has done this so often and was very thoughtful and insightful. He certainly brought a sense of peace to the day. Kim was, of course, interviewed extensively today prior to her biopsy. No questions about the relative merits of her diarrhea or other bodily functions, but still two doozies none the less. So...you're 35, getting a cancer biopsy. Not the greatest day, right. The nurse asks..."Are you feeling depressed?" Duh...I'm getting a biopsy. Follow up question..."Have there been any significant changes over the past year?" You mean besides the fact that somebody told me I have cancer 6 days ago? No...we're all good baby! Bless them for being thorough...but sometimes you have to laugh!
Kim spent approximately 1 hr. 15 minutes with the interventionist radiologist, Dr. Wurst, who performed the biopsy. How hard do you have to work to out perform your name? Tough. Today he did though. He got plenty of great samples, and harvested extras so Kim could send them out for additional opinions. She came out looking and feeling great. In fact...the doctor today seemed to think that the tumor had shrunk since he had seen it on Thursday. Sounds like prayer to me.
We had to wait at the hospital for 3 hours while Kim rested. She couldn't leave until she could walk and pee. Thankfully she did them in succession, and not simultaneously...another blessing!
So...now we're home, she's resting, and now we play the waiting game. I've always hated games...especially this one.
More to come later. Thanks again for your support, comments here, and indulging my ramblings. Those who know me well know all I require is someone to pretend they are listening!
Steve
Now for today. Up and at 'em, left the house at 6:15 to head to TG. Totally felt like the early bird, saw no freakin' worms. Is that good? Can't figure that out. Anyway, we met with tremendous staff at TG today. My mom stayed with me for moral support, though it was tough to admit that I would need that. Our pastor, Paul Freese met us there as well. What a blessing that was. As a pastor, he has done this so often and was very thoughtful and insightful. He certainly brought a sense of peace to the day. Kim was, of course, interviewed extensively today prior to her biopsy. No questions about the relative merits of her diarrhea or other bodily functions, but still two doozies none the less. So...you're 35, getting a cancer biopsy. Not the greatest day, right. The nurse asks..."Are you feeling depressed?" Duh...I'm getting a biopsy. Follow up question..."Have there been any significant changes over the past year?" You mean besides the fact that somebody told me I have cancer 6 days ago? No...we're all good baby! Bless them for being thorough...but sometimes you have to laugh!
Kim spent approximately 1 hr. 15 minutes with the interventionist radiologist, Dr. Wurst, who performed the biopsy. How hard do you have to work to out perform your name? Tough. Today he did though. He got plenty of great samples, and harvested extras so Kim could send them out for additional opinions. She came out looking and feeling great. In fact...the doctor today seemed to think that the tumor had shrunk since he had seen it on Thursday. Sounds like prayer to me.
We had to wait at the hospital for 3 hours while Kim rested. She couldn't leave until she could walk and pee. Thankfully she did them in succession, and not simultaneously...another blessing!
So...now we're home, she's resting, and now we play the waiting game. I've always hated games...especially this one.
More to come later. Thanks again for your support, comments here, and indulging my ramblings. Those who know me well know all I require is someone to pretend they are listening!
Steve
Sunday, September 20, 2009
Big Day Tomorrow
Well...it's Sunday...time to praise God for all the good news we've received this week, pray for better news this week and steady surgeon hands, and watching the Seahawks! Hopefully they have some Husky mojo!
Tomorrow we'll meet at 7:00 AM at Tacoma General for a needle biopsy of the tumor in Kim's chest. If you're the praying type, please pray for the interventional radiologist on the team of Dr. Dennis Nichols as he performs the procedure and the team of pathologists at Tacoma General and Seattle Cancer Care Alliance who will be reviewing the samples. Oh yeah...pray for a goiter too! I'll be drinking my goiter-aid as extra luck. (Get it...goiter-aid, not Gatorade...sorry).
For now...have a great weekend. We had a fantastic day at the fair yesterday with family. We even ran into friends while we were there. We continue to be marveled at the blessings of family and friends in our lives...and by the number of people who are reading this...too funny.
Thanks for everything...we'll keep you posted as we find more out.
Oh...and by the way...no broken nose for Noah...yet.
Tomorrow we'll meet at 7:00 AM at Tacoma General for a needle biopsy of the tumor in Kim's chest. If you're the praying type, please pray for the interventional radiologist on the team of Dr. Dennis Nichols as he performs the procedure and the team of pathologists at Tacoma General and Seattle Cancer Care Alliance who will be reviewing the samples. Oh yeah...pray for a goiter too! I'll be drinking my goiter-aid as extra luck. (Get it...goiter-aid, not Gatorade...sorry).
For now...have a great weekend. We had a fantastic day at the fair yesterday with family. We even ran into friends while we were there. We continue to be marveled at the blessings of family and friends in our lives...and by the number of people who are reading this...too funny.
Thanks for everything...we'll keep you posted as we find more out.
Oh...and by the way...no broken nose for Noah...yet.
Saturday, September 19, 2009
Thursday, September 17, 2009
I need an umbrella...
So...when I thought my life couldn't get any more weird...here are some highlights of the last 24 hours.
Doing laundry last night. Checked the lint trap. Expected lint...maybe paper...hopefully a dollar, even a quarter. Found an underwire. What the hell?
Decided to give Kim the night off tonight. I'm awesome...right? Took the kids to ER volleyball game...love to see the former Ferrucci kids play. I'm done calling it ER...Emerald Ridge sounds much better. Noah, the boy who jumps off campground tables and lands on his feet, tripped on a bleacher and fell. Thank God the bridge of his nose was there to break his fall on the bleacher. Instant bruise, ice pack, trip to the convenience care, 4th co-pay this week, 3rd trip to digital imaging place, now he's laughing and dropping trou' for his sister. Love my life!
Really does seem like when it rains...
Doing laundry last night. Checked the lint trap. Expected lint...maybe paper...hopefully a dollar, even a quarter. Found an underwire. What the hell?
Decided to give Kim the night off tonight. I'm awesome...right? Took the kids to ER volleyball game...love to see the former Ferrucci kids play. I'm done calling it ER...Emerald Ridge sounds much better. Noah, the boy who jumps off campground tables and lands on his feet, tripped on a bleacher and fell. Thank God the bridge of his nose was there to break his fall on the bleacher. Instant bruise, ice pack, trip to the convenience care, 4th co-pay this week, 3rd trip to digital imaging place, now he's laughing and dropping trou' for his sister. Love my life!
Really does seem like when it rains...
September 17, Day 3
People say the funniest things when you are in the doctor's office. While there is nothing funny about cancer, there are some pretty damn funny things that are discussed.
As you are aware...we've discussed Kim's unimpressive diarrhea, (honestly...that never stops being funny). Now...for today's story.
So...we are meeting with the cardiac/thoracic surgeon today..Dr. Dennis Nichols at Tacoma General Hospital. Sounds serious...but what doesn't one the big C has been discussed. Nice nurse...doing medical history stuff of course. Less exciting than when you give blood, but still fairly detailed. The question was..."Do you smoke?" The answer..."No". Smart-alec husband's response? "Well, does it count if she is smokin' hot?" Nurse's answer...yes (said with serious face). Stunned patient and husband. She repeats the question..."Well...do you?" After I explained that I was talking about her being smokin' HOT...she explained she heard smokin' POT. Laughed my ass off...still am.
Story number 2. When Kim was pregnant she was a mush brain. I called it cous cous...same thing. Apparently cancer does the same thing. For the second time in her life, today she was on the cell phone with someone...while looking for her cell phone. I love her...glad she's so cute.
For the details.
Surgeon feels it is either lymphoma or thymoma. Lymphoma requires chemo...thymoma requires surgery...not sure which is better. Biopsy is scheduled for Monday at about 7:30 AM at Tacoma General. Should only take about an hour. We'll hopefully have results in a day or two, then we'll follow up with the oncologist, Dr. Liao, on Thursday at 9:00 AM. Next week will be big. We both really like Dr. Nichols. He's confident, thorough, and ends up that he is a Lute as well! Attaway doc!
The other possibility in all this...could be a goiter! Never thought I'd say this...but pray my wife has a goiter! You learn the best vocab when your sick!
Thanks for reading...I hope you find this helpful.
As you are aware...we've discussed Kim's unimpressive diarrhea, (honestly...that never stops being funny). Now...for today's story.
So...we are meeting with the cardiac/thoracic surgeon today..Dr. Dennis Nichols at Tacoma General Hospital. Sounds serious...but what doesn't one the big C has been discussed. Nice nurse...doing medical history stuff of course. Less exciting than when you give blood, but still fairly detailed. The question was..."Do you smoke?" The answer..."No". Smart-alec husband's response? "Well, does it count if she is smokin' hot?" Nurse's answer...yes (said with serious face). Stunned patient and husband. She repeats the question..."Well...do you?" After I explained that I was talking about her being smokin' HOT...she explained she heard smokin' POT. Laughed my ass off...still am.
Story number 2. When Kim was pregnant she was a mush brain. I called it cous cous...same thing. Apparently cancer does the same thing. For the second time in her life, today she was on the cell phone with someone...while looking for her cell phone. I love her...glad she's so cute.
For the details.
Surgeon feels it is either lymphoma or thymoma. Lymphoma requires chemo...thymoma requires surgery...not sure which is better. Biopsy is scheduled for Monday at about 7:30 AM at Tacoma General. Should only take about an hour. We'll hopefully have results in a day or two, then we'll follow up with the oncologist, Dr. Liao, on Thursday at 9:00 AM. Next week will be big. We both really like Dr. Nichols. He's confident, thorough, and ends up that he is a Lute as well! Attaway doc!
The other possibility in all this...could be a goiter! Never thought I'd say this...but pray my wife has a goiter! You learn the best vocab when your sick!
Thanks for reading...I hope you find this helpful.
Wednesday, September 16, 2009
Day 2 - September 16, 2009
So...rough start to the day. Had to try to tell my staff what is going on...cried through that. I thank God I work with such amazing people. Shoot...now they know I like them. Oh well!
Remembered from yesterday...
Dr. Liao, in his VERY thorough collection of symptoms asked about any diarrhea. Kim explained that she does get it occasionally. He asked how often each day, she said maybe twice, then not again for a few days. His response? "You have very unimpressive diarrhea." Still trying to figure out if that is good or bad...though I'm still laughing my butt off about classifying diarrhea!
Today Kim had another CT scan done to determine whether or not there are more tumors in her body. Good news...no new tumors. So...now that we know that, we have a consultation scheduled for September 17th (happy birthday to my mom) where we will discuss the biopsy procedure and schedule it...most likely for Monday the 21st. We meet with Dr. Liao again on Thursday, September 24th at 9:00 AM to go over the pathology report. THEN we'll know exactly what we're facing, can seek other opinions, and move forward with a plan for treatment.
I'm continually amazed at the outpouring of support for us by friends, families, and colleagues. We truly are blessed people. Kim's strength and sense of humor is inspiring, and I marvel at how she is handling this. How she ended up with a dope like me is amazing. Our kids are great, and only want Mommy to feel better...gotta love 'em.
That's all for now. Just excited to kick cancer in the ass.
Steve
Remembered from yesterday...
Dr. Liao, in his VERY thorough collection of symptoms asked about any diarrhea. Kim explained that she does get it occasionally. He asked how often each day, she said maybe twice, then not again for a few days. His response? "You have very unimpressive diarrhea." Still trying to figure out if that is good or bad...though I'm still laughing my butt off about classifying diarrhea!
Today Kim had another CT scan done to determine whether or not there are more tumors in her body. Good news...no new tumors. So...now that we know that, we have a consultation scheduled for September 17th (happy birthday to my mom) where we will discuss the biopsy procedure and schedule it...most likely for Monday the 21st. We meet with Dr. Liao again on Thursday, September 24th at 9:00 AM to go over the pathology report. THEN we'll know exactly what we're facing, can seek other opinions, and move forward with a plan for treatment.
I'm continually amazed at the outpouring of support for us by friends, families, and colleagues. We truly are blessed people. Kim's strength and sense of humor is inspiring, and I marvel at how she is handling this. How she ended up with a dope like me is amazing. Our kids are great, and only want Mommy to feel better...gotta love 'em.
That's all for now. Just excited to kick cancer in the ass.
Steve
Tuesday, September 15, 2009
September 15 - Day 1
So...did you ever have a conversation with a seemingly nice person and wind up feeling like you've been kicked in the guts! Let's just say that is a starter on my day. Yesterday, my beautiful wife Kim had a CT scan to figure out what was bugging her in her chest...causing pressure. Based on that we were sent to the oncologist today. Not a place you expect to be at 35 for sure...especially with your wife.
So...they we were...full of trepidation...when this otherwise very nice man...Dr. Liau...said the dreaded C word. Looks like the mass in Kim's chest may be cancer...70-80% likelihood. After 90 minutes of discussion it appeared like this: 6 possible types of tumors...4 hopeful...2 not so much. Thankfully...he feels that it is more than likely one of the 4...thank God. Unfortunately, as the tumor appears to be pressing against her sternum it surrounds major arteries and vessels, and therefore can't be operated on. Looks like Kim may be testing the "Bald is Beautiful" mantra people always share in the presence of those more folicly challenged.
What do we know? We know that on 9/16 we have another appointment to have another CT scan, this time of the chest, abdomen, and pelvis to rule out anymore tumors and then a follow up with my new BFF Dr. Liau. After that...biopsy. Pending those results we'll hopefully know more about the type of tumor and how it is treated. Until then...those offering thoughts and prayers...thanks. Those offering other assistance...your time will come...we'll try not to wear you out too soon!
Keep checking...I'll post updates as I have them. In the meantime...here's hoping for the 20-30% benign possibility and a speedy recovery. And the loss of this general feeling of naseau I seem to be carrying around!
By the way...the title? Our team of folks ready to kick the a@@ of cancer is, for now, called The Tumornators (had to explain to Morgan...). We'd love you to join our team. We're hoping to beat cancer like it's the '08 Detroit Lions!
Steve
So...they we were...full of trepidation...when this otherwise very nice man...Dr. Liau...said the dreaded C word. Looks like the mass in Kim's chest may be cancer...70-80% likelihood. After 90 minutes of discussion it appeared like this: 6 possible types of tumors...4 hopeful...2 not so much. Thankfully...he feels that it is more than likely one of the 4...thank God. Unfortunately, as the tumor appears to be pressing against her sternum it surrounds major arteries and vessels, and therefore can't be operated on. Looks like Kim may be testing the "Bald is Beautiful" mantra people always share in the presence of those more folicly challenged.
What do we know? We know that on 9/16 we have another appointment to have another CT scan, this time of the chest, abdomen, and pelvis to rule out anymore tumors and then a follow up with my new BFF Dr. Liau. After that...biopsy. Pending those results we'll hopefully know more about the type of tumor and how it is treated. Until then...those offering thoughts and prayers...thanks. Those offering other assistance...your time will come...we'll try not to wear you out too soon!
Keep checking...I'll post updates as I have them. In the meantime...here's hoping for the 20-30% benign possibility and a speedy recovery. And the loss of this general feeling of naseau I seem to be carrying around!
By the way...the title? Our team of folks ready to kick the a@@ of cancer is, for now, called The Tumornators (had to explain to Morgan...). We'd love you to join our team. We're hoping to beat cancer like it's the '08 Detroit Lions!
Steve
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